Experiences of Newly Diagnosed Oral Cancer Patients during the First Wave of the COVID-19 Pandemic: A Qualitative Study from Pakistan

Int J Environ Res Public Health. 2022 Jul 12;19(14):8508. doi: 10.3390/ijerph19148508.

Abstract

The COVID-19 pandemic has resulted in the scaling back or postponement of non-emergency hospital services, including care of cancer patients. The present qualitative study explored the experiences of newly diagnosed oral cancer patients during the first wave of the COVID-19 pandemic in Pakistan. Patients who attended the Department of Maxillofacial Surgery, Khyber College of Dentistry in July 2020 were selected using a maximum variation purposive sampling method. Seventeen semi-structured interviews were conducted in Pashto, the local language of Khyber Pakhtunkhwa. All interviews were audiotaped, transcribed verbatim, and translated into English. Thematic content analysis yielded eight major themes: pain and generalised physical weakness, shock at diagnosis, psychological distress of the COVID-19 pandemic, faith and religion, double hit loss of employment, social isolation, social support from caregivers, and lack of support from health care professionals. In conclusion, the COVID-19 pandemic has a clear impact on the life experiences of newly diagnosed oral cancer patients. Distress due to delay in accessing health care and lack of support from health care providers are a matter of great concern. Appropriate interventions should be introduced to ensure psychological and social support strategies are in place for patients during interruptions of health care services.

Keywords: COVID-19; Pakistan; health care; life experiences; oral cancer; social support.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • COVID-19* / epidemiology
  • Humans
  • Mouth Neoplasms* / epidemiology
  • Pakistan / epidemiology
  • Pandemics
  • Qualitative Research

Grants and funding

This study was funded by a grant to MIK from the Khyber Medical University, Faculty Research (FaRE) grant (Ref no: KMU/ORIC/FARE/IPH&SS/022). The funding body had no role in study design, methodology, results, decision to publish, or preparation of the manuscript.