Characteristics of dementia family caregivers who use paid professional in-home respite care

Home Health Care Serv Q. 2022 Oct-Dec;41(4):310-329. doi: 10.1080/01621424.2022.2098083. Epub 2022 Jul 9.

Abstract

Caring for a person living with dementia (PLWD) can be challenging, making support services like respite important. Of the types of respite, research on paid professional in-home care specific to family caregivers of PLWD is limited. This study aimed to identify characteristics of dementia caregivers using paid in-home respite. A self-administered online survey (N = 98) examined use of in-home respite. Measures assessed depressive symptoms, burden, and self-rated health. Analyses included descriptive statistics and qualitative coding. Most respondents utilized weekly schedules of in-home respite with a moderate correlation between dependency and hours of respite. Caregivers' self-reported average health, depressive symptoms, and mild-to-moderate burden. The majority of users had lowered perceived stress, were satisfied with services, and indicated the importance of in-home respite during a pandemic. Future research should assess changes in use of paid in-home respite services and overall landscape of respite options for dementia caregivers.

Keywords: Community and Home Care; Community and home care: respite care < community and home care; caregiving; dementia; family caregiver; paid care.

MeSH terms

  • Caregivers
  • Dementia* / therapy
  • Humans
  • Respite Care*
  • Salaries and Fringe Benefits
  • Surveys and Questionnaires