'If I don't Do It, I'm Out of Rhythm and I Can't Focus As Well': Positive and Negative Adult Interpretations of Therapies Aimed at 'Fixing' Their Restricted and Repetitive Behaviours in Childhood

J Autism Dev Disord. 2023 Sep;53(9):3435-3448. doi: 10.1007/s10803-022-05644-6. Epub 2022 Jul 4.

Abstract

Restricted and repetitive behaviours (RRBs) are observed in many children presenting with characteristics of autism and are frequently the targets of psychological interventions. This study used Interpretative Phenomenological Analysis (IPA) to identify positive and negative interpretations from four young adults who received behavioural interventions in their childhood designed to 'fix' RRBs. Two superordinate themes were identified: (1) Doubt, stigma and being fixed according to others, and (2) Embracing Authenticity. They highlighted juxtaposed positions from exclusion, rejection, criticism, and self-doubt in childhood, to rejecting societal censure and embracing authentic growth in adult life. As adults, though the participants recognised themselves as neurologically different from others, they redefined themselves through a lens of neurodiversity, and therefore as not needing to be fixed.

Keywords: Autism spectrum disorder; Interpretative phenomenological analysis; Neurological diversity; Psychological growth; Restricted and repetitive behaviours.

MeSH terms

  • Autism Spectrum Disorder* / psychology
  • Autistic Disorder*
  • Behavior Therapy
  • Child
  • Emotions
  • Humans
  • Social Stigma
  • Young Adult