Establishing a multistakeholder research agenda: lessons learned from a James Lind Alliance Partnership

BMJ Open. 2022 May 24;12(5):e059006. doi: 10.1136/bmjopen-2021-059006.

Abstract

Objective: The James Lind Alliance (JLA) offers a method for better aligning health and care agenda's with the needs of patients, carers and clinicians by bringing them together in a Priority Setting Partnership (PSP). In this paper, we draw attention to crucial lessons learnt when establishing such a shared research agenda.

Key arguments: Having specific strategies and plans in place for maximising dialogic processes in a PSP can help facilitate and maintain trust, innovation and equal inclusion.

Conclusion: Eight lessons learnt have been formulated, based on our observations and reflections on the JLA PSP and our expertise on patient participation and participatory research.

Keywords: ETHICS (see Medical Ethics); Health policy; MEDICAL ETHICS; Paediatric rheumatology; Quality in health care.

Publication types

  • Review
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Biomedical Research*
  • Caregivers*
  • Health Priorities
  • Humans
  • Patient Participation
  • Research Design