Validation of the Spanish Version of the Double Knowledge Expectations and Received Knowledge Significant Other Scale for Informal Caregivers of People with Dementia (KESO-DEM/RKSO-DEM)

Cindy E Frías; Claudia Casafont; Esther Cabrera; Adelaida Zabalegui

doi:10.3390/ijerph19095314

Validation of the Spanish Version of the Double Knowledge Expectations and Received Knowledge Significant Other Scale for Informal Caregivers of People with Dementia (KESO-DEM/RKSO-DEM)

Int J Environ Res Public Health. 2022 Apr 27;19(9):5314. doi: 10.3390/ijerph19095314.

Authors

Cindy E Frías¹, Claudia Casafont¹, Esther Cabrera^{2

3}, Adelaida Zabalegui⁴

Affiliations

¹ Hospital Clinic of Barcelona, 08836 Barcelona, Spain.
² School of Health Sciences, TecnoCampus, Pompeu Fabra University, 08302 Mataro, Spain.
³ Department of Care Management and Social Work, Sechenov University, 119435 Moscow, Russia.
⁴ Department of Nursing, Hospital Clinic of Barcelona, 08836 Barcelona, Spain.

Abstract

Dementia is associated with cognitive decline. Becoming an informal caregiver raises questions, requiring information and support from health professionals to guide home care. A multicenter, longitudinal study was carried out to validate the Spanish version of the double scale of expected and received knowledge for informal caregivers of people with dementia (KESO-DEM/RKSO-DEM), the analysis of the dimensional structure of the instrument, its validity and reliability, and temporary stability was carried out. An analysis of criterion and construct validity, internal consistency, and test−retest stability was performed. The evaluation of the interrelation between dimensions was statistically significant. Regarding internal consistency, the scale values were good both for the scale totals and for each dimension of knowledge, with Cronbach’s alpha coefficients of 0.97. For criterion validity, all items showed temporal stability for both questionnaires (p < 0.05). The availability of a valid, reliable tool for the measurement of expected and received knowledge in caregivers of people with dementia allows an approach based on the real needs of the family and the patient. It is important to design care protocols for people with dementia that are adapted to their needs and expectations and to their non-curative treatment, to improve the emotional well-being of patients and informal caregivers.

Keywords: dementia; informal caregivers; nurse; questionnaire validation.

Publication types

Multicenter Study
Research Support, Non-U.S. Gov't

MeSH terms

Caregivers* / psychology
Dementia* / therapy
Humans
Longitudinal Studies
Motivation
Psychometrics
Reproducibility of Results
Surveys and Questionnaires

Grants and funding

This study received a research grant from the Carlos III Institute of Health, Ministry of Economy and Competitiveness (Spain) with reference PI17/01049, and co-funded by the European Union. Carlos III Institute is a national reference center for funding research projects and research networks on health sciences.