Delivery of multidisciplinary care in the field of differences and disorders of sex development (DSD)

Expert Rev Endocrinol Metab. 2022 May;17(3):225-234. doi: 10.1080/17446651.2022.2072829. Epub 2022 May 9.

Abstract

Introduction: Differences and disorders of sex development (DSD) are a diverse group of conditions, which often present in early childhood and may require input from a group of experts in a wide range of clinical fields. Clinical guidance in this field recommends that these experts function as a multidisciplinary team (MDT) within which each expert has a defined role, which ensures an integrated and streamlined approach to the care of affected individuals.

Areas covered: This review will focus on the benefits of multidisciplinary care for people with DSD, as well as the challenges that may be faced.

Expert opinion: Core members of the MDT for people with DSD include endocrinologists, surgeons, psychologists, geneticists, specialist nurses, radiologists, and gynecologists, although many other health-care professionals may also be pertinent, at different stages of the patient's life. With greater acceptance of remote and digital health-care technology, there is a need to review the traditional concepts of the clinical MDT so that new care models can be explored for effective and efficient delivery of complex care.

Keywords: DSD; MDT; rare conditions; registry; team.

Publication types

  • Review
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Child, Preschool
  • Disorders of Sex Development* / therapy
  • Humans