An Automatic Pediatric Palliative Care Consultation for Children Supported on Extracorporeal Membrane Oxygenation: A Survey of Perceived Benefits and Barriers

J Palliat Med. 2022 Jun;25(6):952-957. doi: 10.1089/jpm.2021.0452. Epub 2022 Mar 18.

Abstract

Background: Pediatric palliative care (PPC) consultation is infrequent among children on extracorporeal membrane oxygenation (ECMO). Objective: Investigate intensive care unit (ICU) team members' perceptions of automatic PPC consultation for children on ECMO in an ICU in the United States. Methods: Cross-sectional survey assessing benefits, barriers to PPC, and consultation processes. Results: Of 291 eligible respondents, 48% (n = 140) completed the survey and 16% (n = 47) answered an open-ended question. Benefits included support in decision-making (n = 98; 70%) and identification of goals of care (n = 89; 64%). Barriers included perception of giving up on families (n = 59; 42%) and poor acceptability by other team members (n = 58; 41%). Respondents endorsed communication with the primary ICU team before (n = 122; 87%) and after (n = 129; 92%) consultation. Open-ended responses showed more positive (79% vs. 13%) than negative statements. Positive statements reflected on expanding PPC to other critically-ill children where negative statements revealed unrecognized value in PPC. Conclusions: Results demonstrate opportunities for education about the scope of PPC and improvements in PPC delivery.

Keywords: automatic consultation model; extracorporeal membrane oxygenation; intensive care unit; palliative care; pediatrics; survey.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Child
  • Cross-Sectional Studies
  • Extracorporeal Membrane Oxygenation*
  • Female
  • Humans
  • Palliative Care* / methods
  • Referral and Consultation
  • Surveys and Questionnaires
  • United States