Decision-making experiences of health professionals in withdrawing treatment for children and young people: A qualitative study

Child Care Health Dev. 2022 Jul;48(4):531-543. doi: 10.1111/cch.12956. Epub 2022 Jan 12.

Abstract

Objective: To explore factors that influence professionals in deciding whether to withdraw treatment from a child and how decision making is managed amongst professionals as an individual and as a team.

Study design: Semi-structured interviews were conducted with a purposive sample of health professionals working at a UK Children's Hospital, with children with life-limiting illnesses whose treatment has been withdrawn. Data were transcribed verbatim, anonymized and analysed using a thematic framework method.

Results: A total of 15 participants were interviewed. Five interrelated themes with associated subthemes were generated to help understand the experiences of health professionals in decision making on withdrawing a child's treatment: (1) understanding the child's best interests, (2) multidisciplinary approach, (3) external factors, (4) psychological well-being and (5) recommendations to support shared decision making.

Conclusion: A shared decision-making approach should be adopted to support professionals, children and their families to make decisions collectively.

Keywords: decision making; healthcare; professionals; treatment.

MeSH terms

  • Adolescent
  • Child
  • Decision Making
  • Health Personnel
  • Humans
  • Parents* / psychology
  • Professional-Family Relations*
  • Qualitative Research
  • Withholding Treatment