Reinforcing Health Data Sharing Through Data Democratization

Stud Health Technol Inform. 2021 Oct 27:285:124-129. doi: 10.3233/SHTI210584.

Abstract

In this paper, we propose a health data sharing infrastructure which aims to empower a democratic health data sharing ecosystem. Our project, named Health Democratization (HD), aims to enable seamless data mobility of health data across trust boundaries, through addressing structural and functional challenges of its underlying infrastructure with a throughout core concept of data democratization. A programmatic design of HD platform was elaborated, followed by an introduction about one of our exploratory designs -an "reverse onus" mechanism that aims to incentivize creditable data accessing behaviors. This scheme shows a promising prospect of enabling a democratic health data sharing platform.

Keywords: data democratization; eHealth; health data infrastructure; privacy enhancing.

MeSH terms

  • Information Dissemination*
  • Trust