Family Role in the Development of Self-Determination for Youth With Intellectual and Developmental Disabilities: A Scoping Review

Intellect Dev Disabil. 2021 Aug 1;59(4):315-334. doi: 10.1352/1934-9556-59.4.315.

Abstract

The development of self-determination is promoted by supportive contexts during adolescence; families are a key part of this context. In adolescent populations, research suggests families can support self-determination in a number of ways, yet less is known about how self-determination is promoted within families of youth with intellectual and developmental disabilities (IDD). To address this knowledge gap, we conducted a scoping review to examine the existing evidence pertaining to the role families of youth with IDD play in supporting the development of self-determination. A review of 24 publications revealed that existing research has focused on understanding family perspectives on self-determination, but there is a lack of studies investigating how families provide supports for self-determination in the home context for youth with IDD. Additionally, little intervention work has focused on supporting families to promote self-determination. Based on the findings, implications for future research and practice are provided.

Keywords: families; intellectual and developmental disabilities; self-determination; youth.

Publication types

  • Review

MeSH terms

  • Adolescent
  • Child
  • Developmental Disabilities*
  • Family Relations
  • Health Promotion
  • Humans
  • Intellectual Disability*
  • Personal Autonomy