Informational support for families of children with autism spectrum disorder

Rev Gaucha Enferm. 2021 Feb 26:42:e20200076. doi: 10.1590/1983-1447.2021.20200076. eCollection 2021.
[Article in English, Portuguese]

Abstract

Objective: To identify the sources of informational support used by families of children with Autism Spectrum Disorder.

Method: Qualitative and descriptive research carried out in three health institutions and three teaching institutions in Paraná, Ceará and Amapá. 55 family members participated who responded to semi-structured interviews, between September 2018 and 2019. Thematic categorical analysis and the resources of Qualitative Data Analysis Software were used.

Results: Families find informational support from several sources, both formal and informal, such as the internet and other sources (books, Workshops, courses, television).

Conclusion: Families use different sources of information, however, often incomplete and contradictory, which can generate a new demand on health professionals, in order to integrate access to information in the health care process, since they must be considering benefits and weaknesses that this represents for society.

MeSH terms

  • Autism Spectrum Disorder*
  • Child
  • Family
  • Health Personnel
  • Humans
  • Social Support