The experience of living with a chronic disease in pediatrics from the mothers' narratives: The Clinical Interview on Parental Sense of Grip on the Disease

Livia Savarese; Maria Francesca Freda; Raffaele De Luca Picione; Pasqaule Dolce; Raffaella De Falco; Maria Alessio; Mauro Cancian; Adriana Franzese; Maria Domenica Guarino; Roberto Perricone; Angelica Petraroli; Riccardo Senter; Claudia Traverso; Andrea Zanichelli; Eugenio Zito; Maria Bova

doi:10.1177/2055102920971496

The experience of living with a chronic disease in pediatrics from the mothers' narratives: The Clinical Interview on Parental Sense of Grip on the Disease

Health Psychol Open. 2020 Dec 8;7(2):2055102920971496. doi: 10.1177/2055102920971496. eCollection 2020 Jul-Dec.

Authors

Livia Savarese¹, Maria Francesca Freda¹, Raffaele De Luca Picione², Pasqaule Dolce³, Raffaella De Falco⁴, Maria Alessio⁵, Mauro Cancian⁶, Adriana Franzese⁵, Maria Domenica Guarino⁷, Roberto Perricone⁷, Angelica Petraroli⁸, Riccardo Senter¹, Claudia Traverso⁵, Andrea Zanichelli⁹, Eugenio Zito¹⁰, Maria Bova⁵

Affiliations

¹ Department of Humanities, University of Naples Federico II, Italy.
² University Giustino Fortunato, Italy.
³ Department of Public Health, University of Naples Federico II, Italy.
⁴ Department of Neuroscience and Reproductive and Odontostomatological Sciences, University of Naples Federico II, Italy.
⁵ Department of Translational and Medical Science, Pediatric Unit, University Federico II, Naples, Italy.
⁶ University of Padua, Italy.
⁷ University of Rome Tor Vergata, Italy.
⁸ Department of Translational Medical Sciences and Center for Basic and Clinical Immunology Research (CISI), WAO Center of Excellence., University Federico II, Naples, Italy.
⁹ Department of Biomedical and Clinical Science Luigi Sacco, University of Milan, Milan, Italy.
¹⁰ Department of Social Sciences, University of Naples Federico II.

Abstract

The Clinical Interview on the Sense of Grip on Chronic Disease has been administered to 68 mothers of children affected by Hereditary Angioedema (C1-Inh HAE), Type 1 Diabetes (T1D), Juvenile Rheumatoid Arthritis (JRA). The objectives are to detect general features of the experience of parenting children with chronic illness as well as the specificities of this experience related to the different conditions. Four Profiles of Sense of Grip were identified: Adempitive, Controlling, Reactive, Dynamic. The Sense of Grip Interview is an effective clinical tool for understanding the characteristics of the disease in daily life, which can help clinicians to encourage family adjustment to disease.

Keywords: adjustment; children; chronic disease; clinical interview; narrative analysis; narratives; parents; qualitative analysis.