Circumstances Related to Moral Distress in Palliative Care: An Integrative Review

Am J Hosp Palliat Care. 2021 Nov;38(11):1391-1397. doi: 10.1177/1049909120978826. Epub 2020 Dec 7.

Abstract

Background: The practice of palliative care is involved with ethical conflicts related to the life-death process and relief of suffering. The inability to act in the face of such dilemmas, due to internal or external barriers, can cause moral distress in the healthcare professionals.

Objective: The purpose of this integrative review is to analyze which circumstances cause moral distress in healthcare professionals who work in palliative care.

Methods: An integrative review of the literature was made in the SCIELO and PubMed databases, based on the descriptors "palliative care" and "moral distress." Articles published between 2015-2020, in Portuguese, Spanish and English were included, following the PRISMA criteria.

Results: From a selection of 97 documents, 56 were completed reviewed and 23 studies were included in the review. Most articles refer to the nursing area, followed by multidisciplinary studies. The circumstances related to moral distress were identified involving: personal aspects; patients and caregivers; team; environment and organization. Communication problems, lack of resources and witnessing professionals giving false hope to patient and family members were the events related to moral distress most mentioned by the articles in the review. Recommendations for reducing and preventing moral distress include empowerment and educational programs in bioethics and palliative care.

Conclusions: Moral distress is an evident phenomenon in palliative care, involving different situations that can impact on quality-of-care provided as well as the well-being of the healthcare professionals.

Keywords: bioethics; end-of-life care; healthcare providers; moral distress; palliative care.

Publication types

  • Review

MeSH terms

  • Family
  • Health Personnel
  • Hospice and Palliative Care Nursing*
  • Humans
  • Morals
  • Palliative Care*