Aim: The aim was to explore the lived experiences of parents who give oral and rectal pharmacological treatment to their children with functional constipation at home.
Design: A phenomenological design with a reflective lifeworld research approach that describes phenomena as they are experienced by individuals.
Methods: From January-May 2019, 15 interviews were conducted with parents of children with functional constipation with home-based oral and rectal treatment. Parents were recruited from three different healthcare levels. Open-ended questions were used starting from the description of a normal day with constipation treatment. Analyses were made with an open and reflective 'bridling' attitude.
Findings: Constipation treatment causes parents to question their parental identity and what it means to be a good parent. Forced treatment makes them feel abusive and acting against their will as parents. There is a conflict between doubt and second thoughts about the treatment, the urge to treat based on the child's needs and encouragement from healthcare professionals to give treatment.
Conclusion: As pharmacological constipation treatment can be experienced as challenging, it is important to help parents make an informed decision about how such treatment should be carried out at home. The findings reveal a medical treatment situation where parents hesitate and children resist, resulting in insecure parents who question their parental identity.
Impact: The findings point to the importance of supporting parents in treatment situations. Healthcare providers need to treat children with constipation with greater focus and more prompt management to prevent these families from lingering longer than necessary in the healthcare system.
目的: 本研究旨在探讨家长在家中对功能性便秘患儿进行口服及直肠药物治疗的生活经历。 设计: 一种现象学设计,采取反思性研究方法,用于描述个人经历。 方法: 2019年1月至5月,对功能性便秘患儿的家长进行15次约谈,并在家中对其进行口服和直肠治疗。患儿家长的医疗水平可以划分为三个层次。治疗便秘过程中,患儿家长应提出开放性问题,并应对这些问题做出答复。此外,分析过程中,应保持开放、反思的“约束性”态度。 调查结果: 便秘治疗会使家长反省自身,并促使其思考成为好家长意味着什么。强迫治疗会使患儿感觉受到虐待,并将导致患儿家长最终违背其作为家长的意愿。质疑与对治疗的重新思考之间存在矛盾,因此,应该根据孩子的需要进行治疗,且医护人员应在治疗过程中对患者予以鼓励。 结论: 利用药物治疗便秘本身具有挑战,因此,需要帮助家长在家中做出明智的决定,这一点至关重要。根据研究结果,可以发现,当前存在一种医疗状况,即家长犹豫不决,孩子反抗,导致家长缺少安全感,进而对其家长身份产生质疑。 影响: 根据研究结果,应在治疗情况下对家长予以支持。医疗保健提供者需要高度关注便秘儿童,并应对其及时治疗,从而避免患儿家庭依赖医疗系统的时间超过必要时间。.
Keywords: children; functional constipation; good-parent beliefs; lived experiences; nursing; parental identity; phenomenology; treatment.
© 2020 The Authors. Journal of Advanced Nursing published by John Wiley & Sons Ltd.