Value of Advance Care Directives for Patients With Serious Illness in the Era of COVID Pandemic: A Review of Challenges and Solutions

Am J Hosp Palliat Care. 2021 Feb;38(2):191-198. doi: 10.1177/1049909120963698. Epub 2020 Oct 6.

Abstract

Advance care directives (ACDs) are instructions regarding what types of medical treatments a patient desires and/or who they would like to designate as a healthcare surrogate to make important healthcare decisions when the patient is mentally incapacitated. At end-of-life, when faced with poor prognosis for a meaningful health-related quality of life, most patients indicate their preference to abstain from aggressive, life-sustaining treatments. Patients whose wishes are left unsaid often receive burdensome life sustain therapy by default, prolonging patient suffering. The CoVID pandemic has strained our healthcare resources and raised the need for prioritization of life-sustaining therapy. This highlights the urgency of ACDs more than ever. Despite ACDs' potential to provide patients with care that aligns with their values and preferences and reduce resource competition, there has been relatively little conversation regarding the overlap of ACDs and CoVID-19. There is low uptake among patients, lack of training for healthcare professionals, and inequitable adoption in vulnerable populations. However, solutions are forthcoming and may include electronic medical record completion, patient outreach efforts, healthcare worker programs to increase awareness of at-risk minority patients, and restructuring of incentives and reimbursement policies. This review carefully describes the above challenges and unique opportunities to address them in the CoVID-19 era. If solutions are leveraged appropriately, ACDs have the potential to address the described challenges and ethically resolve resource conflicts during the current crisis and beyond.

Keywords: COVID-19; advance care planning; advance directives; critical illness; documentation; severe acute respiratory syndrome coronavirus 2; terminal care.

Publication types

  • Review

MeSH terms

  • Advance Care Planning / organization & administration*
  • Advance Directives / psychology*
  • COVID-19 / psychology*
  • Critical Illness / psychology*
  • Decision Making
  • Humans
  • Pandemics / statistics & numerical data
  • Professional-Patient Relations
  • Quality of Life / psychology