Empowerment Practice in Families Whose Child Has a Developmental Disability in the Serbian Context

J Pediatr Nurs. 2021 Mar-Apr:57:e15-e22. doi: 10.1016/j.pedn.2020.09.010. Epub 2020 Sep 24.

Abstract

Purpose: To evaluate the extent to which families of children with developmental disabilities, in relation to parents of typically developing children, feel empowered and the way that their empowerment manifests itself.

Design and methods: The comparative research design was used in a quantitative, descriptive analysis of 99 families (57.6% were parents of children with developmental disabilities and 42.4% were parents of typically developing children). With regard to the research instrument, the Family Empowerment Scale was used based on a conceptual framework consisting of two dimensions: the level of empowerment and the way it is expressed.

Results: The highest levels of parental empowerment were observed in the Family domain (M = 3.9; SD = 0.6), while the lowest were in the Community domain (M = 2.9, SD = 0.9). The statistical differences between the comparing groups of parents were most pronounced in the Family domain (Mann-Whitney U = 693.00, p = 0.00). Parents of children with developmental disabilities have demonstrated a lower level of family empowerment associated with attitudes, as well as behaviours and knowledge about specific ways in which they can help their child.

Conclusion: Based on data obtained from this study, it can be concluded that parents of children with developmental disabilities require extra support and empowerment in order to take a more active part in working with their child and making decisions relevant to his/her development in order to utilize all community - based resources available.

Keywords: Attitudes; Community/political; Empowerment; Family; Knowledge; Service system.

MeSH terms

  • Child
  • Decision Making
  • Developmental Disabilities*
  • Female
  • Humans
  • Male
  • Parents*