A Portrait of Self-Reported Health and Distress in Parents Whose Child Died of Cancer

Omega (Westport). 2022 Sep;85(4):958-973. doi: 10.1177/0030222820959943. Epub 2020 Sep 20.

Abstract

Grieving a child following cancer is a substantially difficult task. The objectives of this research were: 1) to describe current quality of life (QoL), psychological distress and symptoms of grief of bereaved parents, and 2) to explore the role of possible contributors of QoL and psychological distress. Forty-six parents (32 mothers) of children who died of cancer were surveyed on their QoL, distress, and complicated grief. Data were analyzed using multiple linear regression. Parents had a high frequency of grieving symptoms (58%). Mothers reported more retrospective grief symptoms than fathers when describing the year after child death. Current lower mental well-being was associated with experiencing higher retrospective grief symptoms, a shorter period since child death, and being a father. Hence, parents experienced disturbances even long after child death. Mothers and fathers may present specificities that should be considered when developing supportive activities for this vulnerable population.

Keywords: bereaved parents; grief symptoms; pediatric cancer; psychological distress; quality of life.

MeSH terms

  • Adaptation, Psychological
  • Child
  • Death
  • Female
  • Grief
  • Humans
  • Neoplasms*
  • Parents / psychology
  • Quality of Life*
  • Retrospective Studies
  • Self Report