Cancer across the ages: a narrative review of caregiver burden for patients of all ages

J Psychosoc Oncol. 2020 Nov-Dec;38(6):782-798. doi: 10.1080/07347332.2020.1796887. Epub 2020 Aug 12.

Abstract

Problem identification: Approximately 2.8 million Americans care for an individual with cancer. Because the literature typically describes caregiving experiences within patient age-groups (e.g., pediatrics, geriatrics), the purpose of this narrative review was to describe common and unique burdens and distress among caregivers of cancer-patients of different ages.

Literature search: We identified representative peer-reviewed manuscripts related to caregivers of pediatric, adolescent, young-, middle-, and late-adult oncology patients. We combined search terms "caregiver" and "cancer" with "burden," "distress," and/or age-related terms ("pediatric" or "geriatric"). Included studies focused on factors of caregiver-burden and distress.

Data evaluation/synthesis: Universal cancer-caregiving experiences include negative impacts on work-productivity, finances, social-/family-dynamics, and physical/emotional health. Age-related life experiences shape outcomes; pediatric caregivers may have fewer financial resources, whereas concurrent comorbidities create challenges for geriatric caregivers.

Conclusions: Caregiving for cancer patients has universal, shared, and patient age-specific burdens.

Implications for practice: Supportive care based on patient-age may improve caregiver well-being.

Keywords: cancer; caregiver; geriatric; pediatric; psychosocial outcome; quality of life.

Publication types

  • Review

MeSH terms

  • Age Distribution
  • Caregiver Burden / psychology*
  • Humans
  • Neoplasms / therapy*