Thriving with Down syndrome: A qualitative multiple case study

J Appl Res Intellect Disabil. 2020 Nov;33(6):1390-1404. doi: 10.1111/jar.12767. Epub 2020 Jun 15.

Abstract

Background: Down syndrome (DS) is the most common genetic cause of intellectual disability. Prior research has primarily focused on associated medical problems and skill deficits. This study takes a novel positive psychology approach by examining critical individual characteristics and environmental factors that facilitate exceptional quality of life for people with DS.

Method: A qualitative multiple case study design was used to document the lives of four adults thriving with DS. Thriving was defined as high subjective well-being coupled with continued personal development.

Results: Descriptive contexts were provided for each case along with four overarching themes: a supportive social ecology, high expectations for independence, advocacy, and strengths facilitating happiness. A new conceptual framework for understanding thriving with DS was proposed.

Conclusions: These findings provide insight as to what is possible for people with DS, including ideas for future research and practice to promote thriving in the DS population.

Keywords: Down syndrome; ecological systems; intellectual disability; positive psychology; strengths; thriving.

MeSH terms

  • Adult
  • Down Syndrome*
  • Humans
  • Intellectual Disability*
  • Qualitative Research
  • Quality of Life
  • Social Environment