Listening to the autistic voice: Mental health priorities to guide research and practice in autism from a stakeholder-driven project

Autism. 2020 May;24(4):822-833. doi: 10.1177/1362361320908410.

Abstract

Autistic adults commonly experience mental health conditions. However, research rarely involves autistic adults in deciding priorities for research on mental healthcare approaches that might work for them. The purpose of this article is to describe a stakeholder-driven project that involved autistic adults in co-leading and designing research about priorities to address mental health needs. Through a large online survey, two large meetings, and three face-to-face focus group discussions involving over 350 stakeholders, we identified five priorities for mental health research desired by autistic adults. These priorities and preferred outcomes should be used to guide research and practice for autistic adults.

Keywords: autism; autistic; mental health; mental health outcomes; participatory action research; priorities; stakeholder.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Autism Spectrum Disorder* / therapy
  • Autistic Disorder* / therapy
  • Female
  • Health Priorities
  • Humans
  • Male
  • Mental Health
  • Surveys and Questionnaires