On being a client with posttraumatic stress disorder: Interactions with treatment providers and institutional barriers

J Community Psychol. 2021 Apr;49(3):791-805. doi: 10.1002/jcop.22359. Epub 2020 Apr 8.

Abstract

Premature dropout from psychological treatment for posttraumatic stress disorder (PTSD) is common. Little research has sought to understand perceptions of treatment and barriers to treatment in this population. This study analyzed anonymous posts among an online community of individuals with PTSD (93 forum users comprising 158 posts regarding treatment providers and 40 forum users comprising 50 posts regarding institutional barriers). Results indicated that individuals with PTSD desire greater clarity about expectations for treatment, collaboration toward treatment goals, open discussion of client-therapist boundaries, and increased validation among therapists in response to trauma disclosure. Individuals with PTSD also reported multiple systemic issues that were barriers to treatment including a lack of available services in their area, being placed on a waitlist for long periods of time, the cost of treatment as a financial burden, and poor crisis response in emergency rooms. Findings indicated areas of growth for treatment providers which will help inform future treatment studies in improving care and treatment adherence among individuals with PTSD.

Keywords: PTSD; social media; therapy; trauma; treatment.

MeSH terms

  • Humans
  • Medication Adherence
  • Physician-Patient Relations*
  • Quality of Health Care
  • Stress Disorders, Post-Traumatic* / therapy