Qualitative instruments involving clients as co-researchers to assess and improve the quality of care relationships in long-term care: an evaluation of instruments to enhance client participation in quality research

BMJ Open. 2020 Feb 13;10(2):e033034. doi: 10.1136/bmjopen-2019-033034.

Abstract

Objectives: Enhancing the active involvement of clients as co-researchers is seen as a promising innovation in quality research. The aim of this study was to assess the feasibility and usability of five qualitative instruments used by co-researchers for assessing the quality of care relationships in long-term care.

Design and setting: A qualitative evaluation was performed in three care organisations each focused on one of the following three client groups: frail older adults, people with mental health problems and people with intellectual disabilities. A total of 140 respondents participated in this study. The data comprised observations by researchers and experiences from co-researchers, clients and professionals.

Results: Two instruments scored best on feasibility and usability and can therefore both be used by co-researchers to monitor the quality of care relationships from the client perspective in long-term care.

Conclusions: The selected instruments let co-researchers interview other clients about their experiences with care relationships. The study findings are useful for long-term care organisations and client councils who are willing to give clients an active role in quality improvement.

Keywords: care relationship; long-term care; participatory research; qualitative research; quality in health care.

Publication types

  • Evaluation Study
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Aged
  • Ambulatory Care / methods*
  • Ambulatory Care / standards
  • Feasibility Studies
  • Humans
  • Long-Term Care
  • Middle Aged
  • Netherlands
  • Patient Participation / methods*
  • Patient Participation / statistics & numerical data*
  • Qualitative Research
  • Quality Improvement / statistics & numerical data*
  • Residential Treatment / methods*
  • Residential Treatment / standards
  • Surveys and Questionnaires