Living Dis/Artfully with and in Illness

J Med Humanit. 2020 Sep;41(3):395-410. doi: 10.1007/s10912-019-09606-5.

Abstract

This article experiments with multimedia storytelling to re-vision difference outside biomedical and humanistic frames by generating new understandings of living dis/artfully with illness. We present and analyze seven short videos created by women and trans people living with illness as part of an arts-based research project that aimed to speak back to hegemonic concepts of disability that create barriers to healthcare.1 We call for a welcoming in of disability studies' disruptive and re-imaginative orientations to bodily difference to unsettle medicine's humanistic accounts. In turn, we advance medical post-humanistic approaches that call on disability studies to re-embody its theories and approaches.

Keywords: Body becoming theory; Feminist disability studies; Illness narratives; Medical (post) humanities; Multimedia storytelling.

MeSH terms

  • Communication*
  • Disabled Persons*
  • Female
  • Humans