Towards person-centred rehabilitation in dementia - a narrative synthesis

Disabil Rehabil. 2021 Sep;43(18):2673-2679. doi: 10.1080/09638288.2019.1709910. Epub 2020 Jan 6.

Abstract

Purpose: The aim of this study was to identify and synthesize person-centred principles and components as described in rehabilitation intervention studies which target home dwelling people with mild to moderate dementia.

Materials and methods: A narrative synthesis was carried out which included 19 rehabilitation intervention studies targeting people with mild to moderate dementia. The analysis was guided by an initial program theory about person-centredness in rehabilitation, which was developed for this purpose.

Results: Person-centred principles and components were identified and synthesised. Person-centred rehabilitation practice in dementia includes: (1) a focus on the needs, preferences and cultural values of the individual and consideration of his/her life history and biography; (2) the cooperation of professionals and people with dementia, including specific tools and methods such as goal-setting, holistic assessment and methods to activate and empower the individual, and building relationships; (3) organisation and structure.

Conclusion: Compared to the principles of Kitwood, person-centredness in rehabilitation for people living with dementia also includes goal-setting and empowering principles. There is a need for developing the theoretical and philosophical foundation for person-centredness in rehabilitation in relation to people with dementia.IMPLICATION FOR REHABILITATIONPerson-centredness is a key feature in rehabilitation for people living with dementia.In rehabilitation, person-centredness may entail other principles and components than in dementia care in general.There is a need for developing person-centredness in rehabilitation, both in theory and in practice.

Keywords: Person-centredness; dementia; narrative synthesis; rehabilitation.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Dementia*
  • Female
  • Humans
  • Male
  • Narration
  • Patient-Centered Care*
  • Rehabilitation Centers