Participatory Peer Research in the Treatment of Young Adults With Mild Intellectual Disabilities and Severe Behavioral Problems

New Dir Child Adolesc Dev. 2019 Sep;2019(167):117-131. doi: 10.1002/cad.20311. Epub 2019 Sep 11.

Abstract

This study provides an illustration of a research design complementary to randomized controlled trial to evaluate program effects, namely, participatory peer research (PPR). The PPR described in current study was carried out in a small sample (N = 10) of young adults with mild intellectual disabilities (MID) and severe behavioral problems. During the PPR intervention, control and feedback to individuals is restored by training them to become participant-researchers, who collaborate in a small group of people with MID. Their research is aimed at the problems the young adults perceive and/or specific subjects of their interest. The study was designed as a multiple case study with an experimental and comparison group. Questionnaires and a semistructured interview were administered before and after the PPR project. Results of Reliable Change Index (RCI) analyses showed a decrease in self-serving cognitive distortions in the PPR group, but not in the comparison group. These results indicate that PPR helps to compensate for a lack of adequate feedback and control, and in turn may decrease distorted thinking and thereby possibly later challenging behavior.

MeSH terms

  • Adult
  • Behavioral Symptoms / etiology
  • Behavioral Symptoms / therapy*
  • Community-Based Participatory Research*
  • Humans
  • Intellectual Disability / complications
  • Intellectual Disability / therapy*
  • Internal-External Control*
  • Male
  • Patient Participation*
  • Peer Group
  • Research Design*
  • Residential Facilities
  • Self Concept*
  • Severity of Illness Index
  • Treatment Outcome
  • Young Adult