Supporting peer researchers: recommendations from our lived experience/expertise in community-based research in Canada

Harm Reduct J. 2019 Sep 3;16(1):55. doi: 10.1186/s12954-019-0322-6.

Abstract

Community-based research in HIV in Canada is a complex undertaking. Including peer researchers living with HIV meaningfully is intricate and costly. However, this inclusion guarantees results that translate to community action, policy-making, and public awareness. Including HIV+ peer researchers expedites the path from research to intervention. However, we must constantly review our support in light of three implicit tasks performed by peer researchers: constant disclosure, emotional labor, and advocating for meaningful participation. Our team offers four pillars of support to reduce harm and strengthen the self-determination, confidence, advocacy, and impact for HIV+ peer researchers. The provision of emotional, instrumental, educational, and cultural/spiritual support might seldom be standardized within a study, but to successfully engage in community-based research, study teams must articulate what support can be offered in each area.

Keywords: Best practices for support; Community-based research; Lived experience of HIV; Peer researchers.

MeSH terms

  • Canada
  • Communication
  • Community-Based Participatory Research / organization & administration*
  • Ecological Momentary Assessment
  • HIV Infections / therapy*
  • Harm Reduction*
  • Humans
  • Patient Care Team
  • Peer Group*
  • Practice Guidelines as Topic
  • Social Support*