Long term follow-up in congenital diaphragmatic hernia

Laura E Hollinger; Terry L Buchmiller

doi:10.1053/j.semperi.2019.07.010

Long term follow-up in congenital diaphragmatic hernia

Semin Perinatol. 2020 Feb;44(1):151171. doi: 10.1053/j.semperi.2019.07.010. Epub 2019 Jul 31.

Authors

Laura E Hollinger¹, Terry L Buchmiller²

Affiliations

¹ Department of Surgery, Medical University of South Carolina, 96 Jonathan Lucas Street, MSC 613/CSB 417, Charleston SC 29425, USA. Electronic address: hollingl@musc.edu.
² Department of Surgery, Boston Children's Hospital, Boston MA, USA.

PMID: 31451197
DOI: 10.1053/j.semperi.2019.07.010

Abstract

Survivorship of patients with congenital diaphragmatic hernia (CDH) has created a unique cohort of children, adolescents and adults with complex medical and surgical needs. Morbidities specific to this disease benefit from multi-specialty care, and the long term follow up of these patients offers a tremendous opportunity for research and collaboration. Herein we aim to offer an overview of the challenges that modern CDH survivors face, and include a risk-stratified algorithm as a general guideline for a multi-specialty follow up program.

Keywords: Congenital diaphragmatic hernia; Long term; Multidisciplinary; Outcomes.

Published by Elsevier Inc.

Publication types

Review

MeSH terms

Aftercare
Disease Management
Exercise Tolerance
Family Health
Hernias, Diaphragmatic, Congenital / complications
Hernias, Diaphragmatic, Congenital / physiopathology
Hernias, Diaphragmatic, Congenital / surgery*
Humans
Hypertension, Pulmonary / etiology
Hypertension, Pulmonary / physiopathology
Hypertension, Pulmonary / therapy*
Neurodevelopmental Disorders / diagnosis*
Neurodevelopmental Disorders / etiology
Neurodevelopmental Disorders / physiopathology
Neurodevelopmental Disorders / therapy
Quality of Life
Respiratory Insufficiency / etiology
Respiratory Insufficiency / physiopathology
Respiratory Insufficiency / therapy*
Survivors
Transition to Adult Care