Discussing End-of-Life Care Preferences With Family: Role of Race and Ethnicity

Res Aging. 2019 Oct;41(9):823-844. doi: 10.1177/0164027519858716. Epub 2019 Jun 23.

Abstract

This study examined racial, ethnic, and other factors associated with whether older adults discussed their end-of-life (EOL) care wishes with family. A sample of 223 White, 95 African American, and 46 Hispanic adults aged 50 and older from a five-county area of Florida answered questions about sociodemographics, health, and preferences for involving family/friends in health-care decision-making. Analyses describe associations between whether discussions occurred and race/ethnicity and other factors, including preferences for family/friend involvement in health care. In descriptive analyses, one third (n = 113) had not discussed EOL care. No differences were evident between African Americans and non-Hispanic Whites. In multivariate analyses, EOL care discussions were less likely for Hispanics. Further analysis showed this lower likelihood existed among Hispanics with lesser family/friend involvement. Ethnicity influences EOL care discussion, moderated by family/friend involvement, though results are considered preliminary. Knowing the involvement of patients' family/friends could help providers initiate EOL care discussions.

Keywords: advance care planning; advance directives; end-of-life; family communication.

Publication types

  • Multicenter Study
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Advance Care Planning / statistics & numerical data*
  • Aged
  • Aged, 80 and over
  • Black or African American / statistics & numerical data
  • Chronic Disease / ethnology
  • Cross-Sectional Studies
  • Decision Making
  • Family Relations / psychology*
  • Female
  • Hispanic or Latino / statistics & numerical data
  • Humans
  • Male
  • Surveys and Questionnaires
  • Terminal Care / psychology*
  • White People / statistics & numerical data