Development and preliminary evaluation of ilearnKAS: An animated video about kidney allocation to support transplant decision-making

Clin Transplant. 2019 Aug;33(8):e13638. doi: 10.1111/ctr.13638. Epub 2019 Jul 1.

Abstract

Background: We aimed to develop and feasibility test an educational video culturally targeted to African American (AA) patients regarding kidney allocation.

Methods: We iteratively refined an animated video for AAs with multiple stakeholder input and conducted a one-group, pre-post study with 50 kidney transplant candidates to assess video feasibility and acceptability. A mixed population was chosen to obtain race-specific acceptability data and efficacy estimates for a larger study.

Results: Median participant age was 56 years, and 50% were AA. Comparing pre-post video scores, large knowledge effect sizes were found for the cohort (r = 0.7) and in the context of AA race (r = 0.8), low health literacy (r = 0.6), low educational achievement (r = 0.7), age >55 years (r = 0.6), dialysis vintage ≥1 year (r = 0.8), low income (r = 0.7) and low technology access (r = 0.8). Over 87% of participants provided positive ratings on each of the seven acceptability items. The frequency of positive responses increased pre-post video for kidney allocation understanding (78% vs 94%, P = 0.008), decisional self-efficacy (64% vs 88%, P < 0.001) and belief in fairness (76% vs 90%, P = 0.02).

Conclusions: In collaboration with key stakeholders, a culturally targeted educational video was developed that was well received. Results are promising to impact kidney allocation knowledge among AA and non-AA kidney transplant candidates.

Keywords: African American; allocation; kidney transplant access; video education.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Black or African American
  • Cultural Competency
  • Decision Making*
  • Feasibility Studies
  • Female
  • Follow-Up Studies
  • Health Knowledge, Attitudes, Practice*
  • Humans
  • Kidney Transplantation / education*
  • Kidney Transplantation / statistics & numerical data
  • Male
  • Middle Aged
  • Patient Acceptance of Health Care*
  • Patient Education as Topic / methods*
  • Patient Education as Topic / statistics & numerical data
  • Prognosis
  • Tissue Donors / education*
  • Tissue and Organ Procurement / methods
  • Videotape Recording / methods*