Educational needs in families of pediatric liver and kidney transplant recipients: A quality improvement project

Pediatr Transplant. 2019 Jun;23(4):e13412. doi: 10.1111/petr.13412. Epub 2019 Apr 14.

Abstract

Parents of pediatric liver and kidney transplant recipients were surveyed regarding their current education plans (eg, Individualized Education Program, 504), satisfaction with these plans, and interest in educational support from the psychosocial transplant team. Survey results indicate high rates of IEP and 504 plans, academic and related services, and accommodations among this population. The majority of parents/guardians reported satisfaction with their child's current school plan and did not report need for additional transplant team support specific to school services on the survey measure. However, other information highlights the importance for pediatric transplant teams to consider other ways to support this population's educational needs.

Keywords: education; kidney; liver; psychosocial.

MeSH terms

  • Adolescent
  • Child
  • Child, Preschool
  • Education, Special
  • End Stage Liver Disease / psychology
  • End Stage Liver Disease / surgery*
  • Family / psychology
  • Female
  • Humans
  • Kidney Failure, Chronic / psychology
  • Kidney Failure, Chronic / surgery*
  • Kidney Transplantation*
  • Life Change Events
  • Liver Transplantation*
  • Male
  • Needs Assessment*
  • Parents / psychology
  • Patient Care Planning
  • Patient Satisfaction
  • Postoperative Care
  • Quality Improvement*
  • Schools
  • Students / psychology