Advance care planning for patients and their relatives

Int J Palliat Nurs. 2019 Mar 2;25(3):112-127. doi: 10.12968/ijpn.2019.25.3.112.

Abstract

Background: Advance care planning (ACP) has been suggested to improve the quality of life (QoL) and mental wellbeing in severely ill patients and their relatives.

Aim: To investigate the effects of ACP among patients with lung, heart and cancer diseases with an estimated life-span of up to 12 months.

Methods: Patients and relatives were randomised into two groups: one receiving usual care and one receiving ACP and usual care. Themes from the ACP discussion were documented in patients' electronic medical file. Participants completed self-reported questionnaires four to five weeks after randomisation.

Findings: In total, 141 patients and 127 relatives participated. No significant differences were found according to outcomes. However, patients with non-malignant diseases had the highest level of anxiety and depression; these patients seemed to benefit the most from ACP, though not showing statistically significant results.

Conclusion: No significant effects of ACP among patients with lung, heart, and cancer diseases and their relatives regarding HRQoL, anxiety, depression, and satisfaction with healthcare were found.

Keywords: Cancer; Depression; Heart disease; Lung disease; Quality-of-life.

Publication types

  • Randomized Controlled Trial

MeSH terms

  • Advance Care Planning*
  • Aged
  • Chronic Disease / nursing*
  • Chronic Disease / psychology
  • Decision Making*
  • Denmark
  • Family*
  • Female
  • Heart Diseases / nursing
  • Heart Diseases / psychology
  • Hospice Care*
  • Hospice and Palliative Care Nursing
  • Humans
  • Lung Diseases / nursing
  • Lung Diseases / psychology
  • Male
  • Neoplasms / nursing
  • Neoplasms / psychology
  • Quality of Life
  • Surveys and Questionnaires