Managing Stigma: Young People, Asthma, and the Politics of Chronic Illness

Qual Health Res. 2019 Nov;29(13):1877-1889. doi: 10.1177/1049732318808521. Epub 2018 Nov 21.

Abstract

In this article, we explore the relationship between asthma and stigma, drawing on 31 interviews with young people (aged 5-17) in Ireland. Participants with mild to moderate asthma were recruited from Traveller and middle-class settled communities. Themes derived from an abductive approach to data analysis and a critical appreciation of Goffmanesque sociology include asthma as a discreditable stigma, negative social reactions (real, imagined, and anticipated), and stigma management. Going beyond a personal tragedy model, we reflect upon macro-social structures (e.g., ethnicity, class, gender) which underlie stigma and the management of a potentially spoiled identity. This raises issues about the politics of chronic illness, embodying health identities and efforts to tackle stigma in neoliberal times.

Keywords: Goffman; Ireland; asthma; inequality; medical sociology; qualitative interviews; stigma; young people.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adolescent
  • Age Factors
  • Asthma / ethnology
  • Asthma / psychology*
  • Child
  • Child, Preschool
  • Chronic Disease
  • Disclosure
  • Ethnicity / psychology
  • Female
  • Humans
  • Ireland
  • Male
  • Politics
  • Severity of Illness Index
  • Sex Factors
  • Social Stigma*
  • Socioeconomic Factors