"It's just part of life": African American daughters caring for parents with dementia

J Women Aging. 2020 Mar-Apr;32(2):168-182. doi: 10.1080/08952841.2018.1547002. Epub 2018 Nov 20.

Abstract

The purpose of this study was to gain a greater understanding of the experiences of African American daughters caring for parents with Alzheimer's disease or a related dementia (ADRD). In this secondary analysis of a subset (N = 12) of the sample from a previous study, daughters averaged 54 years of age and were caring for parents with moderate to severe ADRD. Results revealed two main categories: Caregiver Concerns and Caregiver Coping. Subcategories included challenging behaviors, social aspects, integration, and family culture and values. Findings offer insight into cultural factors relevant to practice along with research recommendations.

Keywords: Adaptation; dementia; family caregivers.

MeSH terms

  • Adaptation, Psychological
  • Adult Children / psychology*
  • Aged
  • Aged, 80 and over
  • Alzheimer Disease*
  • Black or African American / psychology*
  • Caregiver Burden / psychology*
  • Child of Impaired Parents / psychology*
  • Dementia*
  • Female
  • Humans
  • Middle Aged
  • Nuclear Family / psychology*
  • Qualitative Research