Life is precious: Sarcoma/giant-cell tumors survivors' perspectives on their psychological journey

J Psychosoc Oncol. 2018 Nov-Dec;36(6):681-699. doi: 10.1080/07347332.2018.1498425. Epub 2018 Oct 29.

Abstract

Objectives: Although surviving bone resection/limb salvage surgery treatment is the beginning of the journey towards recovery, the importance of providing patients with post-operative psychological support is often overlooked by health professionals. Hence, patients typically are left to their own devices in terms of ensuring their mental health and well-being. Methodological Approach and Participants: This qualitative analysis of seven long-term sarcoma survivors' reflective journal entries provides insights into the different phases of distress, resilience building, resilient growth and advice-giving that they moved through during their survivorship journey.

Interpretation: Our findings identify the fragility of patient resilience and highlight areas for future research.

Keywords: 2-year post-operative period; diagnostic distress; long-term sarcoma survivorship; psychological journey; survivors’ resilient growth.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Cancer Survivors / psychology*
  • Cancer Survivors / statistics & numerical data
  • Female
  • Giant Cell Tumors / psychology*
  • Giant Cell Tumors / therapy
  • Humans
  • Male
  • Middle Aged
  • Qualitative Research
  • Resilience, Psychological
  • Sarcoma / psychology*
  • Sarcoma / therapy
  • Stress, Psychological / psychology*
  • Value of Life
  • Young Adult