What do stakeholders understand by self-determination? Consensus for its evaluation

J Appl Res Intellect Disabil. 2019 Jan;32(1):206-218. doi: 10.1111/jar.12523. Epub 2018 Aug 21.

Abstract

Background: Advances in international studies on self-determination point out the need for continuous efforts to deepen its understanding and implications. The aim of this study is to obtain a comprehensive pool of items to operationalize the self-determination construct that serves as a starting point towards a valid instrument based on the reports of others.

Method: We conducted a Delphi study of three rounds involving three panels of experts: ten professionals, five people with intellectual disability and six relatives of people with intellectual disability. Data analysis required both qualitative and quantitative methods.

Results: The initial pool of 131 items was refined through the different rounds to a final set composed of 115-some were removed and new ones were added. Content-based evidence is provided. In this study, the present authors generated a potential valid pool of items to develop a new measurement tool based on the latest advances on the self-determination theoretical framework.

Conclusions: The implications for future research focus on strengthening the knowledge of self-determination.

Keywords: Delphi study; assessment; consensus; content validity; experts; self-determination.

MeSH terms

  • Adult
  • Aged
  • Attitude of Health Personnel
  • Consensus*
  • Delphi Technique
  • Family*
  • Female
  • Health Knowledge, Attitudes, Practice*
  • Health Personnel*
  • Humans
  • Intellectual Disability*
  • Male
  • Middle Aged
  • Personal Autonomy*
  • Young Adult