Assessment of Motivations and Willingness to Participate in Research of Outpatients With Anxiety, Mood, and Psychotic Disorders

J Empir Res Hum Res Ethics. 2018 Dec;13(5):546-560. doi: 10.1177/1556264618789564. Epub 2018 Jul 26.

Abstract

The motivations of participants recruited for research, especially from potentially vulnerable populations, have received increasing attention. The present investigation compares the motivations and willingness to participate in research of 134 psychiatric outpatients and 50 controls. The willingness to participate of both groups was similar. We found a higher proportion of psychiatric admissions and a higher degree of computer literacy among those willing to participate. Regardless of their decision concerning participation, the reasons given by the members of both groups were logical and concordant with the related literature. This suggests that negative views about the motivations of psychiatric patients to act as research participants are unfounded. Efforts should focus on the predictors of willingness to participate that we have identified for improving recruitment. The implications of these results for research are discussed.

Keywords: anxiety disorders; consent forms; decision making; mental disorders; mood disorders; motivation; psychotic disorders; research ethics.

MeSH terms

  • Adult
  • Anxiety
  • Anxiety Disorders*
  • Computer Literacy
  • Female
  • Hospitalization
  • Humans
  • Informed Consent*
  • Male
  • Middle Aged
  • Mood Disorders*
  • Motivation*
  • Patient Selection*
  • Psychotic Disorders*
  • Randomized Controlled Trials as Topic
  • Research*