Transitions in Rheumatic Disease: Pediatric to Adult Care

Pediatr Clin North Am. 2018 Aug;65(4):867-883. doi: 10.1016/j.pcl.2018.04.007.

Abstract

Although it has been widely acknowledged for more than two decades that transition from pediatric to adult care is a vulnerable time for adolescents and young adults with rheumatic diseases, current primary and subspecialty care transition and transfer processes remain inadequate. Barriers to improving transition include complex health care systems, neurodevelopmental challenges of adolescents and young adults, and insufficient transition-related education and resources for health care providers. Standardized, evidence-based transition interventions are sorely needed to establish best practices. Quality improvement approaches such as the Six Core Elements of Health Care Transition offer opportunities to improve transition care for teens and young adults.

Keywords: Adolescent; Chronic disease; Health care outcomes; Rheumatology; Transition; Young adult self-management.

Publication types

  • Review

MeSH terms

  • Adolescent
  • Europe
  • Guidelines as Topic
  • Humans
  • Primary Health Care
  • Quality Improvement
  • Rheumatic Diseases / therapy*
  • Rheumatology
  • Self-Management
  • Transition to Adult Care* / standards
  • Young Adult