Informed Consent in Translational Genomics: Insufficient Without Trustworthy Governance

J Law Med Ethics. 2018 Mar;46(1):79-86. doi: 10.1177/1073110518766023. Epub 2018 Mar 27.
No abstract available

Keywords: Genomics; data sharing; informed consent; return of results; trust/trustworthiness.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Genetic Research / ethics*
  • Genomics*
  • Humans
  • Information Dissemination
  • Informed Consent / ethics*
  • Patient Preference