COPD patient education and support - Achieving patient-centredness

Ana Stoilkova-Hartmann; Frits M E Franssen; Ingrid M L Augustin; Emiel F M Wouters; Katharine D Barnard

doi:10.1016/j.pec.2018.05.024

COPD patient education and support - Achieving patient-centredness

Patient Educ Couns. 2018 Nov;101(11):2031-2036. doi: 10.1016/j.pec.2018.05.024. Epub 2018 Jun 1.

Authors

Ana Stoilkova-Hartmann¹, Frits M E Franssen², Ingrid M L Augustin³, Emiel F M Wouters², Katharine D Barnard⁴

Affiliations

¹ Department of Respiratory Medicine, Maastricht University Medical Centre+ (MUMC+), Maastricht, The Netherlands. Electronic address: a.stoilkova@maastrichtuniversity.nl.
² Department of Respiratory Medicine, Maastricht University Medical Centre+ (MUMC+), Maastricht, The Netherlands; Department of Research & Education, CIRO, Centre of Expertise for Chronic Organ Failure, Horn, The Netherlands.
³ Department of Research & Education, CIRO, Centre of Expertise for Chronic Organ Failure, Horn, The Netherlands.
⁴ Bournemouth University, Bournemouth, UK; BHR Limited, UK.

PMID: 29884533
DOI: 10.1016/j.pec.2018.05.024

Abstract

Background: The art of medicine is undergoing a dramatic shift in focus, evolving to focus on patient involvement as partners in care, transforming the traditional, prescriptive, reactive practice of healthcare into a proactive discipline. The personal and societal burden of chronic diseases is burgeoning and unsustainable in current systems, novel approaches are required to address this.

Discussion: Although considerable progress has been made in the development of diagnostics, therapeutics and care guidelines for patients with chronic obstructive pulmonary disease (COPD), questions remain surrounding the implementation of best practice education and support. Current educational programmes, personal limitations and preferences and patient-clinician communication in modification of coping styles and behaviour are discussed. A novel holistic model, the Kaleidoscope Model of Care is proposed to address the barriers to optimal self-care behaviours.

Conclusion and practice implications: Holistic approaches are essential for optimal self-management and improved outcomes. Guidance on personalised goals for patients to help meeting their therapy priorities is needed to aid healthcare professionals (HCPs) and funders to minimise healthcare burden and costs. The novel KALMOD approach may optimise patient empowerment, exploring whole-life factors that impact COPD care and improve interactions between patients and HCPs for optimised outcomes.

Keywords: Chronic obstructive pulmonary disease; Coping styles; Partnership in care; Self-management education.

MeSH terms

Adaptation, Psychological
Humans
Patient Education as Topic*
Patient Participation / methods*
Physician-Patient Relations
Pulmonary Disease, Chronic Obstructive / psychology
Pulmonary Disease, Chronic Obstructive / therapy*
Self Care*
Self-Management / education*