Self-Management and Health Care Transition Among Adolescents and Young Adults With Chronic Kidney Disease: Medical and Psychosocial Considerations

Adv Chronic Kidney Dis. 2017 Nov;24(6):405-409. doi: 10.1053/j.ackd.2017.09.010.

Abstract

Health care transition (HCT) is a process that requires preparation as a continuum from pediatric- to adult-focused services. For adolescents and young adults with chronic or ESRD, this process can be prolonged due to their physical, psychological, family, or ecological factors. HCT preparation is a matter of patient safety and patient rights as the consequences of poor preparation at the time of transfer to adult-focused services are great, including rejection of organs, disease relapse, or even death. We present a case to illustrate important points of HCT preparation, with suggestions for intervention by the interdisciplinary team members who serve (and will serve) these survivors of pediatric-onset health conditions. To monitor the HCT process, yearly measurements of skill mastery need to take place guide interventions.

Keywords: Adolescents and young adults; CKD; Health care transition; Self-management.

Publication types

  • Case Reports
  • Review

MeSH terms

  • Adolescent
  • Cost of Illness*
  • Humans
  • Male
  • Patient Care Management / ethics
  • Patient Care Management / methods
  • Patient Care Management / organization & administration
  • Psychiatric Rehabilitation*
  • Renal Insufficiency, Chronic* / psychology
  • Renal Insufficiency, Chronic* / therapy
  • Self-Management* / methods
  • Self-Management* / psychology
  • Sexual Health
  • Transition to Adult Care / organization & administration*
  • Young Adult