Living with life-prolonging chemotherapy-control and meaning-making in the tension between life and death

Eur J Cancer Care (Engl). 2018 Jan;27(1). doi: 10.1111/ecc.12770. Epub 2017 Sep 11.

Abstract

Chemotherapy, radiotherapy, hormone therapy and immune therapy have made many cancers chronic, potential curable diseases rather than inevitably fatal, but the treatments are often both mentally and physically stressful even if the side effects varies. The right use of palliative chemotherapy is a complex issue and there are many aspects to take into consideration. The aim of the study was to gain insight into the illness narratives of cancer patients, from the day they suspected that something was wrong up to the present day where they are living with incurable cancer, undergoing life-prolonging chemotherapy. Thirteen narrators were included. They were all cancer patients on chemotherapy with the intention of prolonging life (informed by their oncologist) in an outpatient's clinic in Norway. Narrative analyse of their illness stories was applied. The main findings showed that the narrators considered their lives worth living in spite of the treatment. They seemed to take control and build a new life on "what was left after the storm," and described how they found meaning living in the tension between life and death.

Keywords: cancer patients; life-prolonging treatment; narratives.

MeSH terms

  • Aged
  • Female
  • Humans
  • Life Support Care
  • Maintenance Chemotherapy / psychology*
  • Male
  • Middle Aged
  • Narration
  • Neoplasms / drug therapy
  • Neoplasms / psychology*
  • Qualitative Research