Underrepresentation of Hispanics and Other Minorities in Clinical Trials: Recruiters' Perspectives

J Racial Ethn Health Disparities. 2018 Apr;5(2):322-332. doi: 10.1007/s40615-017-0373-x. Epub 2017 Apr 27.

Abstract

Clinical trials and research studies often fail to recruit participants from the minorities, hampering the generalizability of results. In order to mitigate this problem, the present study investigated how race/ethnicity affects the process of recruiting people from racial and ethnic minority groups, by conducting 11 focus groups with professional recruiters. Several themes emerged, such as how to adapt to potential participants' language competency and literacy levels, the importance to engage in culturally appropriate verbal and non-verbal communication, and to establish a sense of homophily between recruiters and patients. In addition, recruiters pointed out possible solutions to accommodate socioeconomic concerns, to adapt to contextual factors-including immigration status-and ultimately to respond to potential participants' mistrust of medical research. These findings are discussed, and future recommendations are provided.

Keywords: Accrual; Clinical trial communication; Minority participants; Recruiters.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Biomedical Research
  • Black or African American*
  • Clinical Trials as Topic*
  • Communication
  • Communication Barriers
  • Cultural Competency
  • Ethnicity
  • Female
  • Focus Groups
  • Hispanic or Latino*
  • Humans
  • Literacy
  • Male
  • Minority Groups*
  • Patient Selection*
  • Research Personnel*
  • Socioeconomic Factors
  • Trust