Online support groups for young women with breast cancer: a proof-of-concept study

Support Care Cancer. 2017 Jul;25(7):2285-2296. doi: 10.1007/s00520-017-3639-2. Epub 2017 Mar 9.

Abstract

Objective: This initial study examined a therapist-led, synchronous, online support group (OSG) with psycho-education (OSG + E) compared to self-help psycho-education (E). The study aims were to examine proof of concept-feasibility, acceptability, and usefulness-and to hone methods for a formal RCT.

Methods: One hundred five young breast cancer survivors (<50 years) post-treatment were randomized either to OSG + E or E. OSG + E received a therapist-led 10-week synchronous online intervention. E received a self-help workbook. Assessments were at baseline, 10 weeks, and 3 months, with willing OSG + E members completing post-study interviews. Researchers used inductive analysis, generating qualitative themes for feasibility, acceptability, and usefulness. We examined trajectories for one primary and two secondary quantitative outcomes and a combined moderator to discover who preferentially benefitted from the intervention.

Results: Qualitative analyses revealed that synchronous chat was at times challenging, but minimal technical coaching, structure, set topics, and professional facilitation enabled conversations that were focused and meaningful. A combined moderator indicated that generally more women benefitted from OSG + E relative to E and particularly those women in semi-rural and rural areas.

Conclusions: This study suggests that therapist-led synchronous OSGs are feasible, acceptable, and useful for young breast cancer survivors and that a future RCT with a larger sample size, perhaps more focused on non-urban areas, is needed to establish its effectiveness.

Keywords: Breast cancer; Internet intervention; Online support groups; Professionally led; Young adult survivors.

MeSH terms

  • Adult
  • Breast Neoplasms / psychology*
  • Communication
  • Female
  • Humans
  • Internet / statistics & numerical data*
  • Middle Aged
  • Self-Help Groups / statistics & numerical data*
  • Survivors / psychology*