Educational video and story as effective interventions reducing epilepsy-related stigma among children

Epilepsy Behav. 2017 Apr:69:12-17. doi: 10.1016/j.yebeh.2017.01.019. Epub 2017 Feb 20.

Abstract

Stigma has been related to epilepsy since ancient times. Despite the importance of this issue, only a few interventions focusing on the reduction of epilepsy-related stigma may be found in the literature. Thus, the aim of this study is to evaluate the effectiveness of two interventions focused on the reduction of epilepsy-related stigma in children aged 9-11years. The first group of children involved in the study (n1=89) completed the 23-item Czech version of the SSE (Stigma Scale of Epilepsy) questionnaire and an 11-item multiple-choice knowledge test, then watched a video and completed the same questionnaire and test immediately after the intervention. The same procedure was used for the second group (n2=93) where a story was read by an instructor. Both groups were retested 6months later using the same methods. Both interventions resulted in long-term decrease of epilepsy-related stigma - the average value on SSE decreased from 55.15 points at baseline testing to 43.28 points in the 6-month follow-up for the case of the video (p<0.001) and from 48.68 points to 36.97 points for the case of the story (p<0.001). Knowledge about epilepsy was also significantly improved with the average result in the knowledge test increasing from 6.58 to 9.09 points in case of the video (p<0.001) and from 6.88 to 8.99 points in case of the story (p<0.001). The results showed that both aforementioned interventions were significant and effective ways to reduce epilepsy-related stigma in the given age group.

Keywords: Children; Epilepsy; Intervention; Knowledge; Stigma; Video.

MeSH terms

  • Child
  • Choice Behavior
  • Czech Republic / epidemiology
  • Epilepsy / epidemiology
  • Epilepsy / psychology*
  • Epilepsy / therapy*
  • Female
  • Health Knowledge, Attitudes, Practice
  • Humans
  • Male
  • Narration*
  • Patient Education as Topic / methods*
  • Social Stigma*
  • Surveys and Questionnaires
  • Treatment Outcome
  • Video Recording / methods*