Patient-Reported Outcomes in Rheumatoid Arthritis

Lilian H D van Tuyl; Kaleb Michaud

doi:10.1016/j.rdc.2016.01.010

Patient-Reported Outcomes in Rheumatoid Arthritis

Rheum Dis Clin North Am. 2016 May;42(2):219-37. doi: 10.1016/j.rdc.2016.01.010. Epub 2016 Mar 17.

Authors

Lilian H D van Tuyl¹, Kaleb Michaud²

Affiliations

¹ Amsterdam Rheumatology and Immunology Center, Department of Rheumatology, VU University Medical Center, PO Box 7057 1007 MB, Amsterdam, The Netherlands.
² Department of Medicine, University of Nebraska Medical Center, 986270 Nebraska Medical Center, Omaha, NE 68198-6270, USA; National Data Bank for Rheumatic Diseases, 1035 North Emporia, Suite 288, Wichita, KS 67214, USA. Electronic address: kmichaud@unmc.edu.

PMID: 27133486
DOI: 10.1016/j.rdc.2016.01.010

Abstract

Patient-reported outcomes (PROs) and their measures have a long and important history for determining the status and treatment of patients with rheumatoid arthritis (RA). This article describes the history and evolution of PROs for RA and the current state of the field, with key examples of accepted and widely used measures, and offers some reflection on the roles of PROs for the study and management of RA.

Keywords: Health domains; Patient-reported outcomes; Questionnaires; Rheumatoid arthritis.

Publication types

Review

MeSH terms

Activities of Daily Living*
Arthralgia / etiology
Arthralgia / physiopathology*
Arthritis, Rheumatoid / complications
Arthritis, Rheumatoid / physiopathology*
Arthritis, Rheumatoid / psychology
Cognitive Dysfunction / etiology
Cognitive Dysfunction / psychology
Depression / etiology
Depression / psychology
Fatigue / etiology
Fatigue / physiopathology*
Humans
Patient Reported Outcome Measures*
Quality Indicators, Health Care
Quality of Life
Severity of Illness Index
Sleep Wake Disorders / etiology
Sleep Wake Disorders / physiopathology*