Participatory Genomic Testing as an Educational Experience

Kathryn B Garber; Katherine M Hyland; Shoumita Dasgupta

doi:10.1016/j.tig.2016.03.008

Participatory Genomic Testing as an Educational Experience

Trends Genet. 2016 Jun;32(6):317-320. doi: 10.1016/j.tig.2016.03.008. Epub 2016 Apr 22.

Authors

Kathryn B Garber¹, Katherine M Hyland², Shoumita Dasgupta³

Affiliations

¹ Department of Human Genetics, Emory University School of Medicine, Atlanta, GA, USA.
² Department of Biochemistry and Biophysics and Institute for Human Genetics, University of California, San Francisco, School of Medicine, San Francisco, CA, USA.
³ Department of Medicine, Biomedical Genetics Section, Boston University School of Medicine, Boston, MA, USA. Electronic address: dasgupta@bu.edu.

PMID: 27117243
DOI: 10.1016/j.tig.2016.03.008

Abstract

Several institutions have incorporated participatory genomic testing into their curricula to engage students in experiential learning, and this has raised ethical concerns. We summarize strategies for managing these concerns and review evidence of the influence of this experiential approach on student knowledge and attitudes towards genomics.

Keywords: direct to consumer; genomic medicine; medical education; personal genomic testing; precision medicine.

Publication types

Review

MeSH terms

Curriculum / trends*
Genome, Human / genetics*
Genomics*
Health Knowledge, Attitudes, Practice
Humans