Between Openness and Privacy in Genomics

Effy Vayena; Urs Gasser

doi:10.1371/journal.pmed.1001937

Between Openness and Privacy in Genomics

PLoS Med. 2016 Jan 12;13(1):e1001937. doi: 10.1371/journal.pmed.1001937. eCollection 2016 Jan.

Authors

Effy Vayena^{1

2}, Urs Gasser²

Affiliations

¹ Health Ethics and Policy Lab, Institute of Epidemiology, Biostatistics and Prevention, University of Zurich, Zurich, Switzerland.
² Berkman Center for Internet & Society, Harvard Law School, Harvard University, Cambridge, Massachusetts, United States of America.

Abstract

With the prospect of genomic data becoming ever more easily available, Effy Vayena and Urs Gasser discuss how we could balance making the most of its benefits with reducing its risks to privacy.

Publication types

Research Support, Non-U.S. Gov't
Review

MeSH terms

Databases, Genetic / ethics
Databases, Genetic / standards
Genetic Privacy / ethics*
Genetic Privacy / standards*
Genomics / ethics*
Genomics / standards*
Humans

Grants and funding

EV was partially funded by the Swiss National Science Foundation.