Hanging by a thread: exploring the features of nonresponse in an online young adult cancer survivorship support community

J Cancer Surviv. 2016 Feb;10(1):185-93. doi: 10.1007/s11764-015-0465-8. Epub 2015 Jun 30.

Abstract

Purpose: Finding helpful information can be challenging for young adult (YA) cancer survivors; thus, it is critical to examine features of online posts that successfully solicit responses and assess how these differ from posts that do not solicit responses.

Methods: Using posts from an online YA cancer support community, we analyzed initial posts that did and did not receive replies utilizing Linguistic Inquiry Word Count (LIWC).

Results: Independent t tests revealed significant differences between the sets of posts regarding content, emotions, cognitive processes, pronoun use, and linguistic complexity. More specifically, posts with replies contained fewer words per sentence, had more first-person pronouns, had more expressions of negative emotions, and contained more present tense and past tense verbs.

Conclusions: The findings of this study can help improve peer-exchanged support in online communities so that YA cancer survivors can more effectively receive digital support. This research also provides communication researchers, health educators, and care providers a lens for understanding the YA cancer survivorship experience.

Implications for cancer survivors: This research helps survivors be strategic in how they use online forums to seek advice and support. More complete understanding of what kinds of prompts produce responses allows those in need to craft messages in ways that are most likely to elicit support from fellow cancer survivors. These implications for message design extend beyond blogging and can be applicable for text message and email exchanges between cancer patients and their care providers.

Keywords: Cancer; LIWC; Nonresponse; Online communities; Young adult.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Counseling
  • Electronic Mail
  • Emotions
  • Female
  • Humans
  • Internet*
  • Male
  • Middle Aged
  • Neoplasms / epidemiology
  • Neoplasms / psychology*
  • Online Systems
  • Patient Participation / psychology*
  • Patient Participation / statistics & numerical data
  • Social Support*
  • Survival Rate
  • Survivors / psychology*
  • Young Adult