Caring for caregivers of high-needs children

Healthc Q. 2014;17(3):30-5. doi: 10.12927/hcq.2014.24017.

Abstract

The Caregiver Framework for Children with Medical Complexity, led by the Hospital for Sick Children, is a ground-breaking initiative that validates and supports the vital role of unpaid, family caregivers. The project uses a supported self-management model that includes a modest amount of funding to address pressing needs, and relies on Key Workers who provide ongoing education, counselling and care management to assist caregivers in planning over the longer-term. This paper describes the findings from a multi-stage, mixed-methods evaluation to examine the design and outcomes of the Caregiver Framework.

MeSH terms

  • Caregivers* / organization & administration
  • Caregivers* / psychology
  • Case Management
  • Child
  • Chronic Disease / therapy
  • Counseling
  • Female
  • Health Services Needs and Demand
  • Humans
  • Male
  • Ontario
  • Program Evaluation
  • Social Work / methods
  • Social Work / organization & administration
  • Stress, Psychological / etiology