Newspaper coverage of biobanks

Ubaka Ogbogu; Maeghan Toews; Adam Ollenberger; Pascal Borry; Helene Nobile; Manuela Bergmann; Timothy Caulfield

doi:10.7717/peerj.500

Newspaper coverage of biobanks

PeerJ. 2014 Jul 31:2:e500. doi: 10.7717/peerj.500. eCollection 2014.

Authors

Ubaka Ogbogu¹, Maeghan Toews², Adam Ollenberger², Pascal Borry³, Helene Nobile⁴, Manuela Bergmann⁵, Timothy Caulfield⁶

Affiliations

¹ Faculties of Law and Pharmacy & Pharmaceutical Sciences, University of Alberta , Edmonton, Alberta , Canada ; Health Law Institute, Faculty of Law, University of Alberta , Edmonton, Alberta , Canada.
² Health Law Institute, Faculty of Law, University of Alberta , Edmonton, Alberta , Canada.
³ Department of Public Health and Primary Care, KU Leuven , Leuven , Belgium.
⁴ Department of Public Health and Primary Care, KU Leuven , Leuven , Belgium ; Department of Epidemiology, German Institute of Human Nutrition , Potsdam-Rehbruecke, Nuthetal , Germany.
⁵ Department of Epidemiology, German Institute of Human Nutrition , Potsdam-Rehbruecke, Nuthetal , Germany.
⁶ Health Law Institute, Faculty of Law, University of Alberta , Edmonton, Alberta , Canada ; Faculty of Law and School of Public Health, University of Alberta , Edmonton, Alberta , Canada.

Abstract

Background. Biobanks are an important research resource that provides researchers with biological samples, tools and data, but have also been associated with a range of ethical, legal and policy issues and concerns. Although there have been studies examining the views of different stakeholders, such as donors, researchers and the general public, the media portrayal of biobanks has been absent from this body of research. This study therefore examines how biobanking has been represented in major print newspapers from Australia, Canada, the United Kingdom and the United States to identify the issues and concerns surrounding biobanks that have featured most prominently in the print media discourse. Methods. Using Factiva, articles published in major broadsheet newspapers in Canada, the US, the UK, and Australia were identified using specified search terms. The final sample size consisted of 163 articles. Results. Majority of articles mentioned or discussed the benefits of biobanking, with medical research being the most prevalent benefit mentioned. Fewer articles discussed risks associated with biobanking. Researchers were the group of people most quoted in the articles, followed by biobank employees. Biobanking was portrayed as mostly neutral or positive, with few articles portraying biobanking in a negative manner. Conclusion. Reporting on biobanks in the print media heavily favours discussions of related benefits over risks. Members of the scientific research community appear to be a primary source of this positive tone. Under-reporting of risks and a downtrend in reporting on legal and regulatory issues suggests that the print media views such matters as less newsworthy than perceived benefits of biobanking.

Keywords: Biobanks; Consent; ELSI; Evidence-based policy; Media representations; Privacy; Public perceptions.

Grants and funding

The authors UO, MT, AO and TC are supported by funding from the Allergy, Genes and Environment Network (AllerGen), the Cancer Stem Cell Consortium (CSCC), Genome Canada and the Canadian Institutes of Health Research (CIHR), and the project PACEOMICS funded by Genome Canada, Genome Alberta, the Canadian Institutes for Health Research (CIHR), and Alberta Health and Wellness. PB is funded through the EUCelLEX project by the European Commission FP7 programme (grant agreement 601806). The funders had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript.